Rare Disease Report
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Just Do It #CuresNow

JUNE 21, 2016
Max Schill



Max Schill has a RASopathies called Noonan syndrome. It is a rare disease without a treatment or cure.

Max has been working tirelessly for the past 2 years to get the The 21st Century Cures Act passed. Last year, the 21st Century Cures Act pass Congress and we are now waiting for the Senate to review and vote on it.

Max is tired of waiting.


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