The parents of Charlie Gard, Chris Gard and Connie Yates, have withdrawn their legal challenge before the High Court in London, England. It was determined that the experimental therapy they had hoped to give the ailing Charlie will no longer be effective since Charlie’s deterioration from having mitochondrial DNA depletion syndrome is too significant.
Grant Armstrong, the lawyer representing the parents, told the High Court today that ‘the parents’ worst fears have been confirmed’ and ‘it is now too late to treat Charlie.’
Last week, Michio Hirano, M.D. of the Department of Neurology at Columbia University spend 2 days examining Charlie with doctors at Great Ormond Street Hospital to determine if nucleoside therapy would be a viable option for the ailing baby.
Charlie Gard, as RDR
in the past, has a rare mitochondrial DNA depletion syndrome that has left the 11-month old on life-support.
For several months, Charlie’s parents and the Great Ormond Street Hospital have been in a legal battle over what is in the child’s best interest. The hospital’s preference is to remove the child from life-support since there are no treatment options available and to alleviate him of any further suffering. Gard’s parents wanted to take him to the United States to give him an opportunity to undergo the experimental therapy being tested by Dr. Hirano.
To date, all courts had decided in favor of the hospital but in a final appeal before the High Court in London, the parents were asked to provide clinical evidence that the experimental therapy being offered in the United States would provide some value for the 11-month old. The Judge was expected to make his final decision on the case tomorrow.
The legal battle involving Charlie Gard captured the attention of many in the rare disease community, as well as celebrities and world leaders, from Cher and Paul Ryan, to Pope Francis and President Donald Trump
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