One day, in retrospect, the years of struggle will strike you as the most beautiful.
Those words were once spoken by the world-renowned Austrian neurologist and the founder of psychoanalysis, Sigmund Freud, and they still echo almost 8 decades since his death.
The struggle of Huntington’s disease (HD) patients is a well-documented one, as there are an estimated 30,000 diagnosed patients in the United States with the condition, and another 150,000 Americans have a 50% risk of developing the disease. The incurable hereditary disorder is fatal, and causes the progressive breakdown of nerve cells in the brain. It depreciates the physical and mental abilities of patients, yet still finds itself attached to a stigma. Patients continually find themselves discriminated against and encouraged to conceal their condition.
Ironically, many of Freud’s theories on affective disorders were based on people suppressing or hiding their inner thoughts and feelings.
It was recently announced that Annie Freud, great-grandaughter of the psychologist, will be giving a reading at a poetry and art event at Deal Town Hall in England on July 11 at 7pm in an effort to raise funds for the Huntington’s disease association. The outspoken poet is best-known for her dramatic style and occasionally shocking subject matter.
The event was organized by Nicholas Martine, who runs the Millstone House, an HD care home in Deal, and holds HD research in high regard. The Millstone House caters for individuals with physical and/or learning disabilities, and patients with complex medical needs like HD patients.
Per the Millstone House website
, “Staff are well-versed in providing care for people with Huntington’s Disease, and have regular training updates via the Huntington's Disease Association.”
Tickets are available from Deal Town Hall, and the Seaward Gallery, whose owners are co-organizing the event.
For more on Huntington’s Disease awareness events, follow Rare Disease Report