Rare Disease Report
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Patients & Caregivers

The Hidden Costs of Managing a Rare Disease

FEBRUARY 18, 2017
Marielle Marinoff
In an RDR exclusive interview, we spoke with Marielle, a parent of a child diagnosed with MPS II (Hunter syndrome). During the interview, she discussed the other factors of managing a child with a rare disease such as travel expenses, insurance, and needs that insurance doesn't always cover.
 
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