Rare Disease Report
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Physicians
Patients & Caregivers

Sean Ekins

Sean divides his time between clients at Collaborations In Chemistry which currently includes: Collaborative Drug Discovery, the Hereditary Neuropathy Foundation as well as biotechs and other companies. In addition he is CEO and President at Phoenix Nest focused on rare disease drug discovery.
February 27, 2016
Why aren't we (companies, academics, families, foundations etc) collaborating more instead of being silos?
December 14, 2015
How do you adequately encourage companies to develop such treatments when the market is only a very small number of patients?
October 19, 2015
It happens rarely, a human interest disease story that is not driven by a drug company that makes it to the prime time national news.
September 22, 2015
If rare, neglected, and for that matter tropical diseases, had a hard time getting visibility in the media, that changed almost overnight with the announcement By Turing Pharmaceuticals of their 5000% price increase for the toxoplasmosis drug they own.
August 14, 2015
We have tried networking, reaching out to MPS organizations, patient families and clinicians globally in our efforts to find these patients and families.
July 28, 2015
"However small the chance might be of striking lucky, the chance was there." ― Roald Dahl, Charlie and the Chocolate Factory
November 20, 2014
As they say, "we are now open for business"
November 12, 2014
I never imagined I would be the CEO of a small rare disease company.
January 01, 1970
If rare, neglected, and for that matter tropical diseases, had a hard time getting visibility in the media, that changed almost overnight with the announcement By Turing Pharmaceuticals of their 5000% price increase for the toxoplasmosis drug they own.
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