Lisa Schill is a parent advocate, dedicated to improving the lives of those living with rare diseases. Ms. Schill specializes in connecting caregivers, researchers, support organizations and families to help support patients in the pursuit of advancing treatment options and patient outcomes. She currently serves as Vice President of the RASopathies Network, a non-profit dedicated to advancing research of the RASopathies by bringing together families, clinicians and scientists. She is currently working as a Meetup Advocacy Ambassador for Global Genes facilitating rare disease meet ups for the aHUS (Atypical Hemolytic-Uremic Syndrome) population. She is a co-investigator for the 2015 International Meeting on the Genetic Syndromes on the RAS/MAPk Pathway to be held in Seattle, WA with the co-chairs, Drs. David Stevenson and Brigitte Widemann.