Rare Disease Report
Patients & Caregivers

Rare Disease Clinical Trials - Are They Measuring the Right Things?

FEBRUARY 27, 2017
Erika Augustine, MD

Erika Augustine, MD, of the University of Rochester talks about the need to have a dialog with the key players in the rare disease community (patients, clinicians, pharmaceutical companies, FDA) on what outcome measures are most appropriate in clinical trials involving rare diseases. 

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