Rare Disease Report
Patients & Caregivers

Embrace Your Stripes

FEBRUARY 10, 2017
Jim Radke

Boss: I liked that zebra dance thing you did last fall.

Me: Thanks.

Boss: You should do another one - this time use the studio with the green screen.

Me: You don't think it will look silly?

Boss: Oh, absolutely. It will look ridiculous. But, Rare Disease Day is coming up and that day is about registries, orphan drugs, biomarkers, clinical trials, and political lobbying. The day could really use some zebra dancing.

Me: You're right.

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