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Rare Disease Day - How Important is it?

MARCH 08, 2017
Austin Letcher



Austin Letcher of CoRDS (Coordination of Rare Diseases at Sanford) talks about the importance of Rare Disease Day.

Transcript

Oh, it's huge. I mean for raising awareness, it is so fundamental to creating change and I think that's what all of us are here to do today. We actually just have a couple events at Sanford research in Sioux Falls South Dakota where we were trying to do the same thing – creating awareness, bringing people in to create a sense of community because that sense of isolation is really present for every single rare disease and I think that's something that we need to continue as advocates, patients and leaders – to really spread the word.


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