Rare Disease Report

NORD Summit, Patient Focused Drug Development, and a Gala

NOVEMBER 05, 2015
Susan Kahn

At the NORD Rare Diseases and Orphan Products BreakThrough Summit, we talked with Susan Kahn, executive director of the National Tay-Sachs & Allied Diseases Association (NTSAD) about the summit and her organization's plans to use the information obtained to advance their efforts to find treatments for Tay-Sachs, Canavan, Sandhoff, GMI and other related conditions.

Susan also commented on the upcoming Imagine & Believe fundraiser being held November 5th in Cambridge, Massachusetts. For more information, click here.

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