Author and YouTube star Lizzie Velasquez is getting her own show on Fullscreen about body image. Lizzie has a rare congenital condition that gives her very unique physical attributes. She led a campaign to stop internet bullying.
Tim Boyd and Paul Melmeyer from NORD's policy team were on Facebook Live earlier today. Tim and Paul talked for over 50 minutes about various policy issues relevant to the rare disease community, including the Affordable Care Act, and its proposed replacement, the American Health Care Act.