Top Medical News Today

Special Eyewear Allows the Legally Blind to See (and Play Basketball with the Harlem Globetrotters)
eSight eyewear is the Star Trek like device that allows legally blind 13-year-old, Ethan LaCroix, the ability to play basketball with the Harlem Globetrotters
“The Remarkable Journey of Dr. Warden” Wins 2017 Neuro Film Festival Award
The 2017 Neuro Film Festival awarded William T. Doorley with the Neuroscience Is…™ Essential award for “Work in Progress: The Remarkable Journey of Dr. Warden.”
Europe Review Board Gives Thumbs Up to BioMarin's Batten Disease Drug
Brineura (cerliponase alfa) is an enzyme replacement therapy that in just a few short years has shown itself to be an effective treatment for children with CLN2 disease.
Film About Marathon Runner BethAnn Telford Wins 2017 Neuro Film Festival Award
The 2017 Neuro Film Festival recently awarded Meghan Tucker with the Neuroscience Is…™ Critical award for her video, “BethAnn Telford World Marathon Challenge.”
Tick-Borne Powassan Virus Infects Infant
A 5-month old New York infant was diagnosed with Powassan disease after a symptoms and a tick on his knee led him to Connecticut Children’s Medical Center.
Missouri Choruses Join Forces to Raise Money for Rare Disease
Chorus groups from five Missouri high schools and a local university are raising money for the son of a choir director Paul Hart who was diagnosed with DPIG.
First Gene Therapy Ever Approved Calling it Quits
uniQure, the first and only company to have a gene therapy approved, will not seek to renew its gene therapy approval in Europe.
Physical Therapy Advice - Don't Be a Martyr
Laura Case, physical therapist at Duke University Medical Center reminds persons with neuromuscular disorders that there are numerous technologies available to help disabled persons lead a full life.
49ers Great Dwight Clark Speculates Football's Role in ALS Diagnosis
Dwight Clark has ALS, more commonly known as Lou Gehrig’s Disease. Clark is left wondering how much of a role that his football career played in his diagnosis.
Gastrointestinal Problems in Pompe Disease
Paul McIntosh patient of Pompe disease, medical student, and researcher conducted a survey about gastrointestinal complaints that are common in Pompe patients.
RareDR Resource Guide
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